Watch this video

[GenuineRisk]

Friends of mine have a daughter diagnosed with Rett Syndrome and have done a short video about it:

https://www.youtube.com/watch?v=ukQG...I10ueGWaDOkkPY

If you have three minutes, please watch. Any revenue they generate from the video (as a result of the ad playing beforehand) they're donating to two organizations sponsoring clinical research trials. And, if you're so motivated, share the video link.

I'd never heard of Rett Syndrome before this video; it's a pretty rare condition, but very devastating for families that have a daughter with it.

[Danzig]

Originally Posted by GenuineRisk

Friends of mine have a daughter diagnosed with Rett Syndrome and have done a short video about it:

https://www.youtube.com/watch?v=ukQG...I10ueGWaDOkkPY

If you have three minutes, please watch. Any revenue they generate from the video (as a result of the ad playing beforehand) they're donating to two organizations sponsoring clinical research trials. And, if you're so motivated, share the video link.

I'd never heard of Rett Syndrome before this video; it's a pretty rare condition, but very devastating for families that have a daughter with it.

so sorry that their daughter has this and that they're having to go thru all that.

i watched the video, will do my best to share.

[my miss storm cat]

Poor baby. I had never heard of it either.

My thoughts are with the family.

[GenuineRisk]

Originally Posted by Danzig

so sorry that their daughter has this and that they're having to go thru all that.

i watched the video, will do my best to share.

Thanks. Reading about the condition was interesting- it's genetic, but not hereditary. And it's on the X chromosome only- a mutation on one of them. The additional normal X chromosome in a girl is why girls it's more prevalent in girls- boys with the mutation on the X usually die shortly after birth.